The Kissing Bug: A True Story of a Family, an Insect, and a Nation's Neglect of a Deadly Disease

The Kissing Bug: A True Story of a Family, an Insect, and a Nation's Neglect of a Deadly Disease

  • Downloads:1378
  • Type:Epub+TxT+PDF+Mobi
  • Create Date:2021-08-24 01:16:18
  • Update Date:2025-09-24
  • Status:finish
  • Author:Daisy Hernández
  • ISBN:1951142527
  • Environment:PC/Android/iPhone/iPad/Kindle

Summary

Growing up in a New Jersey factory town in the 1980s, Daisy Hernández believed that her aunt had become deathly ill from eating an apple。 No one in her family, in either the United States or Colombia, spoke of infectious diseases, and even into her thirties, she only knew that her aunt had died of a rare illness called Chagas。 But as Hernández dug deeper, she discovered that Chagas—or the kissing bug disease—is more prevalent in the United States than the Zika virus。 Today, more than three hundred thousand Americans have Chagas。


Why do some infectious diseases make headlines and others fall by the wayside? After her aunt’s death, Hernández begins searching for answers about who our nation chooses to take care of and who we ignore。 Crisscrossing the country, she interviews patients, epidemiologists, and even veterinarians with the Department of Defense。 She learns that outside of Latin America, the United States is the only country with the native insects—the “kissing bugs”—that carry the Chagas parasite。 She spends a night in southwest Texas hunting the dreaded bug with university researchers。 She also gets to know patients, like a mother whose premature baby was born infected with the parasite, his heart already damaged。 And she meets one cardiologist battling the disease in Los Angeles County with local volunteers。 


The Kissing Bug tells the story of how poverty, racism, and public policies have conspired to keep this disease hidden—and how the disease intersects with Hernández’s own identity as a niece, sister, and daughter; a queer woman; a writer and researcher; and a citizen of a country that is only beginning to address the harms caused by Chagas, and the dangers it poses。 A riveting and nuanced investigation into racial politics and for-profit healthcare in the United States, The Kissing Bug reveals the intimate history of a marginalized disease and connects us to the lives at the center of it all。 

Download

Reviews

Amandasantana

This book was a much harder read than I expected。 I obviously had never heard about the kissing bug disease and it’s a very scary disease。 The author did a great job of blending the science, her personal story and the many stores of those she interviewed。 One of the major things that struck me was how important diversity in publishing is。 This disease doesn’t discriminate who it infects, but nevertheless for a variety of reasons it hits the Latino community particularly hard。 This author was abl This book was a much harder read than I expected。 I obviously had never heard about the kissing bug disease and it’s a very scary disease。 The author did a great job of blending the science, her personal story and the many stores of those she interviewed。 One of the major things that struck me was how important diversity in publishing is。 This disease doesn’t discriminate who it infects, but nevertheless for a variety of reasons it hits the Latino community particularly hard。 This author was able to deftly bring these stories because of being a bilingual writer。 The chapter where she went to the hospital with one of her interview subjects and she acted as a translator for him was both touching and showed how she was able to bring such nuance to the story。 。。。more

Nore

A heartfelt, well-written book on Chagas disease and the kissing bug, alternating between a factual accounting of the history of the disease and humanizing stories of Hernández's own tia and other men and women suffering from Chagas。 Sometimes the narrative reaches excessively navel-gazey heights, leaving me with the impression that Hernández is a bit self-obsessed, but her writing is emotional and compelling outside of these parts, and I can't fault her for being in her own head concerning a di A heartfelt, well-written book on Chagas disease and the kissing bug, alternating between a factual accounting of the history of the disease and humanizing stories of Hernández's own tia and other men and women suffering from Chagas。 Sometimes the narrative reaches excessively navel-gazey heights, leaving me with the impression that Hernández is a bit self-obsessed, but her writing is emotional and compelling outside of these parts, and I can't fault her for being in her own head concerning a disease which caused the slow, painful death of her aunt。 。。。more

Stephanie

Fascinating。 Thats。 It。 But also, I am even more 😳 with bugs 😩

Roan

I loved it。 Everything I want in nonfiction。 It’s memoir, it’s reporting, it’s science writing。 I love Daisy Hernández。 I’ve thought a lot about kissing bugs and Chagas disease and was totally primed to want to read a book about it, and this is EXACTLY the most perfect that book could ever be。

Katie

THE KISSING BUG is some of the best nonfiction I’ve ever read。 The author mixes reporting on kissing bugs and the illness they can cause, Chagas, with absolutely beautiful writing about her own life and family。 I learned a lot without being confused or stuck in jargon。

Ann Dobosz

A beautifully told story I read in almost one sitting, I was so captivated。 Hernández weaves together science and family history and grief, honoring the complexities of each。 She illustrates "the American reality: some people are taken care of and others are not" with very personal stories。 A fascinating read in covid-era United States。 A beautifully told story I read in almost one sitting, I was so captivated。 Hernández weaves together science and family history and grief, honoring the complexities of each。 She illustrates "the American reality: some people are taken care of and others are not" with very personal stories。 A fascinating read in covid-era United States。 。。。more

Ellen Church

A very readable book。 Since I had known nothing of the subject outside of the name of the 'disease', I learned a lot。 A very readable book。 Since I had known nothing of the subject outside of the name of the 'disease', I learned a lot。 。。。more

Karen

Well-researched and personalized report on Chagas。 Eye-opening。

Koen

Fascinating read on the Kissing Bug disease of Chagas disease。I had never heard of it and that's one of the main points of the book。 As it is mostly contracted by people in Sout America there is a lot less awareness。 A pleasure to read。 Fascinating read on the Kissing Bug disease of Chagas disease。I had never heard of it and that's one of the main points of the book。 As it is mostly contracted by people in Sout America there is a lot less awareness。 A pleasure to read。 。。。more

Adora

I enjoy books about public health and epidemiology so a little bit predisposed to love this book。 Hernandez writes lyrically and unflinchingly about her tía's experience with Chagas disease, caused by parasites transmitted by "kissing bugs," and the broader ways in which American healthcare fails poor communities and communities of color - "containing" diseases within a "second America。" Even if you don't have a special interest in the parasite that is the subject of this book, it's worth readin I enjoy books about public health and epidemiology so a little bit predisposed to love this book。 Hernandez writes lyrically and unflinchingly about her tía's experience with Chagas disease, caused by parasites transmitted by "kissing bugs," and the broader ways in which American healthcare fails poor communities and communities of color - "containing" diseases within a "second America。" Even if you don't have a special interest in the parasite that is the subject of this book, it's worth reading for its beauty as a memoir and its depth of reporting as researched nonfiction。 。。。more

Chelsea

I had thought I would enjoy this, based on the interesting medical and social topics, but the memoir and creativity of the telling was what ended up blowing me away and making it possible to finish this in a single night and late morning of (sometimes itchy) reading。 Like the author compassionately details for us at the start, my skin crawled with every description and depiction of the bugs themselves much like hers did at first, but the importance and urgency and need to face up to what was rea I had thought I would enjoy this, based on the interesting medical and social topics, but the memoir and creativity of the telling was what ended up blowing me away and making it possible to finish this in a single night and late morning of (sometimes itchy) reading。 Like the author compassionately details for us at the start, my skin crawled with every description and depiction of the bugs themselves much like hers did at first, but the importance and urgency and need to face up to what was really happening helped。 I still shifted and fidgeted every few minutes in reader’s empathy, and reminded myself guiltily that not only do I live in a place with no fear of this bug-borne parasite, I also live on the other side of the epidemiological divide。 Thank you for the window into your experience。 。。。more

Dominique Decoster

Very informative book。 I had never heard of this insect and the disease it can cause!

Lauren Sage

Book club choice 7/11/21

Melissa

Bumped this up my TBR because Lupita raved about it on her IG - and it was a really good book to read in clinic while waiting for the centrifuge to finish between subjects。 Appropriate, too, because infectious disease and public health。An outstanding blend of memoir and science journalism。 Pick this one up immediately。

Geraldine (geraldinereads)

I love medical/science books and memoirs, so this was right up my alley。 It weaves together just the right amount of science about Chagas AKA the kissing bug disease as well as Daisy's life。 I do wish it had dived deeper into the science aspect of it, because I wanted to know everything and more。 I still learned so much, and at the same time I've become completely terrified of kissing bugs!! I'm looking forward to seeing what Daisy Hernández comes out with next。Thank you to Tin House for the rev I love medical/science books and memoirs, so this was right up my alley。 It weaves together just the right amount of science about Chagas AKA the kissing bug disease as well as Daisy's life。 I do wish it had dived deeper into the science aspect of it, because I wanted to know everything and more。 I still learned so much, and at the same time I've become completely terrified of kissing bugs!! I'm looking forward to seeing what Daisy Hernández comes out with next。Thank you to Tin House for the review copy! 。。。more

Colleen Villasenor

Part family history and part scathing commentary on the inequities of healthcare, this book explores the "forgotten" disease, Chagas, also known as the kissing bug disease from the biting insects that transmit the parasite。 This book is a tender story of self-discovery as well as a journalistic investigation of the impact of this disease。 It also mentions other diseases that have been relegated to similar situations。 The author points out that these diseases have not been eradicated, only contai Part family history and part scathing commentary on the inequities of healthcare, this book explores the "forgotten" disease, Chagas, also known as the kissing bug disease from the biting insects that transmit the parasite。 This book is a tender story of self-discovery as well as a journalistic investigation of the impact of this disease。 It also mentions other diseases that have been relegated to similar situations。 The author points out that these diseases have not been eradicated, only contained to "second America" and other pockets of poverty。 This is a well-researched book that starts with her own family's experience as they watch a "tia" slowly die from a disease they had never heard of before。 It shows the impact of this disease on families and the valiant efforts of those who are battling it。 。。。more

Potter Wickware

Somewhat informative about a public health issue in Latin America, but focus blurred by tendentious speculations concerning ethnic identity in the post-colonial world。

Clancy

I’ll admit that I picked this one up because I loved A Cup of Water Under My Bed and so was quite unprepared for how different it was! That said, this is a gorgeous read, I highly recommend it!

J

This was such a beautifully written book。 Hernández is a masterful storyteller, weaving together the personal story of her aunt with history, science, and public policy。 Although the public health angle would have been interesting on its own, the personal stories really pull you in。 Even if you know nothing about Chagas and don't live in a place with kissing bugs, this book is well worth reading。 This was such a beautifully written book。 Hernández is a masterful storyteller, weaving together the personal story of her aunt with history, science, and public policy。 Although the public health angle would have been interesting on its own, the personal stories really pull you in。 Even if you know nothing about Chagas and don't live in a place with kissing bugs, this book is well worth reading。 。。。more

Esta Montano

I loved "A Cup of Water Under Under My Bed" and therefore, expected to love anything that Daisy Hernandez would subsequently write。 However, this book was not what I expected。 In The Kissing Bug, Hernandez tells the story of her Aunt Dora, who was bit by a bug in Colombia, leading to her eventual death。 The Kissing Bug, found not only in Latin America, but in parts of the US, carries a parasite that deteriorates major organs of the body。 Although Dora was brought to the US to seek treatment, too I loved "A Cup of Water Under Under My Bed" and therefore, expected to love anything that Daisy Hernandez would subsequently write。 However, this book was not what I expected。 In The Kissing Bug, Hernandez tells the story of her Aunt Dora, who was bit by a bug in Colombia, leading to her eventual death。 The Kissing Bug, found not only in Latin America, but in parts of the US, carries a parasite that deteriorates major organs of the body。 Although Dora was brought to the US to seek treatment, too much damage had been done to save her, although she did manage to live for a number of years in a delicate state。Hernandez did an admirable amount of research to write the book, and her studies of the Kissing Bug are impressive。 She also interweaves stories of her family - most of all her confusing family dynamics -- as she tells of Dora's plight (as well as that of others affected by this bug's bite)。 Much of the book is technical and delves deep into the bug, it's habitat, the parasite that it harbors which leads to a human body's destruction, and notable researchers who have studied the bug。 I had to skim through these sections, as they were too academic for me。 I did, however, enjoy the stories of Hernandez's family。 What this book also does, especially after COVID, is provide us with another bug to worry about and fear。 The ravages of the Kissing Bug disease are fierce。 。。。more

Parker Acevedo

A deeply personal story about the epidemiological divide through the lens of Chaga’s Disease。 Honest, moving, and powerful。

Elyse Walters

Audiobook。。。narrator: Frank Corzo 6 hours and 55 minutes I thought this story was absolutely fascinating。。。。informative。。。。scary。。。haunting。。。relevant。。。。。engaging 。。。。both as a personal story and an eye opening social science intrigue-concern。 Taken right from the blurb: “The Kissing Bug” tell us the story of how poverty, racism, and public policies have conspired to keep this disease hidden — and how the disease intersects with Hernandez’s own identity as a niece, sister, and daughter; a queer Audiobook。。。narrator: Frank Corzo 6 hours and 55 minutes I thought this story was absolutely fascinating。。。。informative。。。。scary。。。haunting。。。relevant。。。。。engaging 。。。。both as a personal story and an eye opening social science intrigue-concern。 Taken right from the blurb: “The Kissing Bug” tell us the story of how poverty, racism, and public policies have conspired to keep this disease hidden — and how the disease intersects with Hernandez’s own identity as a niece, sister, and daughter; a queer woman; a writer and researcher; and a citizen of a country that is only beginning to address the farms caused by Chagas and the dangers it poses。 A riveting and nuanced investigation into radical politics and for-profit health care in the United States。 The Kissing Bug reveals the intimate history of a marginalized disease and connects as to the lives at the center of it all”。 *Chagas* 。。。。。 。。。。Chagas Disease also known as American trypanosomiasis, is a tropical parasite disease caused by Trypanosoma cruzi。 It is spread mostly by insects known as Triatominae, or kissing bugs。 The symptoms change over the course of the infection。 In the early stages, symptoms are typically either not present or mild, and may include fever, swollen lymph node‘s, headaches, or swelling at the site of the bite。 After 4 to 8 weeks, and treated individuals and or the chronic phase of the disease, which in most cases does not result in further symptoms。 Up to 45% of people with chronic infection develop heart disease 10-30 years after the initial illness, which can lead to heart failure。 Digestive complications, including an enlarged esophagus oran enlarged colon, may also occur after 21% of people, and after 10% of people may experience nerve damage。 Daisy tells the true story about her aunt who died of Chagas。 Honestly。。。I had a hardest time (ha。。。pun) > ‘digesting’ the detail descriptions of Daisy’s S L O W 。。。。。 brutal, painful, debilitating death。There had been many surgeries。 Her aunt had to have a colonoscopy bag。 Her aunt was a fighter 。。。。but, man, was she ever sick FOR YEARS。I’ll spare the details 。。。。But for any of us who share a less-than-perfect-working colon or any type of digestive problems。。。。reading parts of this book is grueling。 Thankfully 。。。。 Daisy moves on from digestive descriptions。。。。onto。。。。COCKROACHES。。。。I thought I’d die in this part of the family-history storytelling,too。。。。。Daisy and I shared something (in our early childhoods)。。。。we both watched our mother’s killing those black buggers。。。。My mother, and Daisy‘s mother, were on their hands and knees scrubbing, killing, cleaning for hours — trying to win the fight against the many cockroaches in our homes。 Daisy learned - in her family - at a young age - [silent mythology’s]。。。a insect ‘can’ kill。 Daisy I was told that her grandmother died when she was only two years of age。 Worms we’re coming out of her nose。。。 and then she died。 YUCK。。。。some of the early ‘true-story’ visuals were making me squirm quite uncomfortably。 Once Daisy moved into more documentation of ‘other’ factual stories— both in the United States, and in Latin America 。。。giving us statistics and information about the great epi divide 。。。。。I was no longer squirming over the breakdown of bodily function from rare horrific parasites diseases。。。。rather my understanding, sadness, and anger elevated (once again。。。only all the more clearly now) 。。。。。that our political policies HAVE CONSPIRED to try to hide the fact that when it comes to medical needs - equal rights and justice for all。。。。。there is a stark contrast between skin color, and economic status。 Towards the end of this book, Daisy gave many other examples where people have been harmed from our political leaders and ‘for-profit’ health care administrators ‘hiding truths’。 Because of what we’ve been living through with Covid-19, reading this book today 。。。。 a look at the effects of painful diseases 。。。。(bad enough) 。。。。and groups of people (black and brown), who live on the wrong side of the epi divide 。。。。。or in absolute poverty 。。。。or the wrong country。。。。we still have a lot to learn about our moral responsibility for the sufferings of others 。。。。Equal global exchange。。。。。colonization, politics, and economic justice is not just a good idea。。。。the time has come for equal resources。The political relationship between the United States and other countries has had a detrimental effect on the health of people around the globe。Kudos to Daisy Hernandez 。。。。。for this astonishing book 。。。。。 。。。。。much reads like page turning fiction。。。。(family love, family relationships, illness, family tales, coming of age, immigration)。。。。while also opening our eyes to the seriousness of these issues that affect all of us。 (much as we have witnessed with covid-19)。 。。。more

Lupita Reads

Such a remarkable book and story。 More to come later but definitely a favorite of the year - read this book!

Kisha

THE KISSING BUG: ⭐️⭐️🌗I found this to be hard to get through in parts and remarkably relatable in others。

Steve

While I enjoyed this book, I felt that it was too heavily weighted towards biography and could have explored the science in more detail。 I liked Daisy Hernández’s conversational tone and her very clear explanations of the science。 The use of actual cases was also very good, bringing the disease away from just stats and into real people。 I didn’t find the pacing consistent and there were times that I wanted her to get on with the story。 In addition, I found the writing to sometimes be overly-sent While I enjoyed this book, I felt that it was too heavily weighted towards biography and could have explored the science in more detail。 I liked Daisy Hernández’s conversational tone and her very clear explanations of the science。 The use of actual cases was also very good, bringing the disease away from just stats and into real people。 I didn’t find the pacing consistent and there were times that I wanted her to get on with the story。 In addition, I found the writing to sometimes be overly-sentimental and that the use of Spanish words was somewhat disruptive as sometimes she explained what they meant and sometimes less so。 I thought that the points on neglected tropical diseases and the “epi divide” were very well made。 Overall this book is well worth reading。 Thank you to Netgalley and Tin House for the advance reader copy。 。。。more

Anna

Interesting & très timely exploration of Chagas (a widespread disease that "transcends" borders, very pandemic-era-appropriate)。 Drawing parallels to the current Covid situation, Hernández shows that who is affected by specific diseases & to what degree those people are able to get access to medical preventative care/treatment is a largely political issue。Enjoyed reading about what Hernández describes as her "family history" of the disease, especially in terms of her relationship to her Tía Dora Interesting & très timely exploration of Chagas (a widespread disease that "transcends" borders, very pandemic-era-appropriate)。 Drawing parallels to the current Covid situation, Hernández shows that who is affected by specific diseases & to what degree those people are able to get access to medical preventative care/treatment is a largely political issue。Enjoyed reading about what Hernández describes as her "family history" of the disease, especially in terms of her relationship to her Tía Dora。 But what felt like the bulk of the book, the "In Search of the Kissing Bug" section, read like a slew of expository essays/mini-articles on random scientific/historical elements of Chagas, which was not what I was in the mood for。 She is a reporter by training, and that's how her writing reads。 Some pretty funny parts smattered throughout: "I noticed a flask in the cooler labeled "LOL。" 'What does that stand for?' 'Lots of life,' he said, matter-of-fact" (132)。The endings of the final two chapters are nice--they stress the complexity of relationships with family。 。。。more